There are approximately 30,000 Americans living with cystic fibrosis; I am one of them. This progressive, genetic, autosomal-regressive disease affects the lungs, digestive tract, pancreas, liver, kidneys, and sinuses, just to name a few. Long-term issues include difficulty breathing and coughing up mucus and blood as a result of frequent lung infections. It has over 2,000 different mutations. And the average life expectancy is 38 years old. I am currently 33. Cystic Fibrosis is an invisible illness, meaning that you can't always tell from the outside whether someone has CF, but internally the body is undergoing a lot of pain and suffering. Drug side effects, frequent doctor visits, and constant "tune ups" (2-4 week trips to the hospital to receive IV antibiotics) are just part of the difficult journey that those of us with this disease face on a regular basis. Will you join me and support my fundraising goal?
Real progress has been made for those who have CF (including the recent FDA approval of a revolutionary medication called Trikafta), but there is still no cure for this devastating disease. Furthermore, Trikafta does not help all people living with Cystic Fibrosis, nor are all people with CF eligible to receive access to this break-through drug due to the high cost ($311,000/yr). Please help me, and the thousands of other people living with this terminal disease, to find better therapies and a CURE once and for all!
If you're curious to know more about why I walk, I'm an open book!
THANK YOU FOR YOUR SUPPORT!!
Ryan Anthony Mincer