Friends and Family,
I hope this letter finds you all doing well and enjoying all that 2023 has to offer! Being near friends and family has been a blessing, and I would encourage you never to take it for granted! We are doing well, back in Southern California, and absolutely loving it.
We have had a very eventful year, and the joy keeps coming! This past year we were able to celebrate our 15th wedding anniversary in Costa Rica, go to Kauai, where we learned how to water repel, take countless trips with family and friends to the beaches nearby, vacation in palm desert, then live it up in Vegas and finally celebrate the new year with an unforgettable trip to Maui! I would have never imagined life would be this fulfilling and this rewarding! To say we are genuinely blessed is an understatement.
I am reminded daily of how far the treatment for Cystic Fibrosis has come. I am down in my treatment times to roughly 30 minutes a day, and my lung function is higher than ever. I rarely cough and can accomplish all of my goals in a day. This is all in part to the revolutionary new drug that I was fortunate to begin in 2019. Trikafta has changed the way most, but not all, individuals with CF live. To put it in perspective, my mom gave me a statistic that in 2011 there were only 219 babies born to CF moms, and in 2020 that number went up to 619! We were one of the lucky ones in 2011, as Kaydence will start 7th grade next year!
It is my goal that every year we continue to participate in the Cystic Fibrosis Great Strides Fundraiser. I truly appreciate those who have donated consistently for over 30 years and those who have joined the fundraiser more recently. Your dedication and interest in Cystic Fibrosis mean so much to me, as it truly takes a village. Thank you all so much!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.