My name is Katie McCarthy Santos and I have Cystic Fibrosis.
Cystic Fibrosis is something I was born with, and at the age of 26, I am still battling the disease. CF affects my lungs and my digestive system along with many other organs, which causes me to get lung infections and pneumonia quite frequently. Currently there is no cure for CF.
What is life like living with CF? Well for starters, I have to take 20 different medications on a daily basis, along with chest therapy and nebulizer treatments for two hours each day, just to help clear my lungs. I exercise regularly to keep my lungs healthy as well. In fact, the predicted median age of survival for a person with CF is in their mid 40's.
I will be turning 27 this year, and I want to beat this disease now, more than ever. Every day, kids continue to lose their lives because of CF, but I remain determined to keep fighting until a cure is found. We continue to hope.
On Saturday, May 7, Team Katie Bug and the Harman Volunteers will reunite once again at the Santa Clarita West Creek Park tp participate in the Cystic Fibrosis Foundation's Great Strides Walk. Over the last 22 years, Team Katie Bug has raised over $250,000 to help find a cure. Your support is overwhelming, and has meant the world to my family as well as all of those who are affected by this disease.
If you are unable to join us at the event, please help me and all those living with CF by making a donation.
Making a donation is easy and secure! Just click the "Click to Donate" button on this page to go to make a donation that will be credited to my team. Any amount you can donate is greatly appreciated!
Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.