Amorá a.k.a Titi Guuurl is truly one of a kind, she may be just 3 years old but has personality like no other. She loves all things spooky/ aliens (her favorite color is black and white) and her favorite song is shake shake shake your booty. You can’t help but love her!! Help us find her cure or a modulator.. awareness and any donation will get us a step closer to it. Amorá does have rare mutations and falls in the 10%. The fight is not over and we do this not just for her but for everyone living with CF! You guys are truly the real deal, we see you and you’re not alone.
Thank you all for support and donations, this truly means everything to us!
XOXO
Our Great Strides Story
We walk for a cure for all people with cystic fibrosis. By joining our team, you can help us end this disease!
To become a team member, click the “join this team” button. Once you register, it’s easy to donate and start fundraising.
Our team is determined to ensure that every person with CF can live a long, healthy life, without the limitations caused by their disease. We can’t wait for you to join us.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.