Another year doing the Great Strides Walk!
We hope that you will join our team and help us get one step closer to a cure for cystic fibrosis – a rare, genetic, life-shortening disease that makes it difficult to breathe.
With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond.
The last year has been rough for Kennedy as we've started to see more symptoms of her CF rear their head. Doctors visits started to include the words "severe" and more medicines and therapies were added. Kennedy was event sent by ambulance to the ER on night when urgent care was unable to get her oxygen levels up to a stable level. Her overall lung function dropped to below 80%. However 2021 also brought some good news! A medication that had brought significant improvement to people with CF was finally approved for Kennedy. Within 5 months of starting Trikafta, Kennedy's lung function increased from 76% to 96%. A 20% increase is huge and wouldn't be possible without the help of the Cystic Fibrosis Foundation!
Will you join us?
This year's walk will be in a new location!! We hope that you will join us in Brier Creek, Morrisville, NC on Saturday May 20, 2022! We are excited about this new location that will provide a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
Over the last 9 years, with the love and support of our family and friends, Team Kure for Kennedy has raised over $192,000 for the CF Foundation and know that one day our efforts will be part of an ultimate cure! Please consider donating to help us continue to raise more funds to make CF finally stand for Cure Found!
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
FOR YOUR SAFETY AND THE SAFETY OF OTHERS: