Ashley Casper

My Great Strides Story

Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.

Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

**OUR STORY**

Tyler is 14 and was diagnosed shortly after birth. We knew of Cystic Fibrosis as it runs on my Husbands side of the family. He had 2 Aunts he sadly never got the chance to meet. Knowing this and the possibility of him having the gene I opted to get tested for the CF gene while pregnant and the test came back negative so we thought we were in the clear! 2 weeks after Tyler was born I got the call that his newborn screen came back positive. They assured us that since I was negative that he was probably just a carrier. So we did further testing and at about 2 months old Tyler was diagnosed with CF. I was told that I must have a gene that was very rare as it takes the Mother and Father each having the CF gene. Tyler takes countless pills and does treatments daily to help keep him healthy ! Consider donating and joining our team to help find a cure ! 

You can support me!

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.