Trikafta day has come! Words can’t describe what this milestone means for Cameron and our family. Since the day we received her diagnosis, Cam’s team has reassured us by describing the breakthrough therapy that is allowing people with CF to live normal, healthy lives. Through all the highs and lows, we have been counting down the days until she could take her first dose. Now that day has come, and we are overwhelmed by so many emotions.
- Gratitude, for everyone who fundraised, advocated, participated in trials, and broke scientific ground to develop this highly effective therapy for CF
- Relief, that Cameron will get a reprieve from her symptoms and that her disease progression will slow
- Anxiety, because Trikafta is not a cure, because side effects can derail treatment, and because CF is right there waiting to rear its head if there is any disruption in access
- Hope, that this is the start of an amazing new chapter where Cameron spends less time in the walls of a hospital and more time being a kid
- Resolve, to fight for continued progress, especially for the 10% of CF-ers who don’t yet have an effective therapy, for those without access to CFTR modulators, and for a CURE for this relentless disease
So, we are channeling all these emotions into our fundraising efforts for the Cystic Fibrosis Foundation. The Foundation is the driving force behind the amazing scientific progress in CF, and we are confident that a cure is on the horizon. We’d love your help to make this dream a reality. Here’s how:
- Join us in this year’s Great Strides walk! Triangle friends, we’d love to have you walk with us on Saturday, May 18th, 9:00 AM at Brier Creek Park. For friends and family elsewhere, you can represent Cam’s Fam at a walk near you.
- Donate to the CF Foundation on behalf of Cam’s Fam. Every dollar helps, and no donation is too small.
Thank you, friends! We are so grateful for your love and support and for rallying behind Cameron as she starts this exciting new chapter.
About CF
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. We walk for them.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
You can support us!
By supporting our fundraising goal, you have an opportunity to be part of ending this disease. Please consider joining us to help make medical history.
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.