My Great Strides Story
Testing newborns for CF did not become a national goal until the late 90's, so neither my son nor his wife knew they were carriers. Our Gracen inherited the CF gene from both parents, and here we are, fighting the good fight. She is the most beautiful child, and a blessing to all those that meet her. She is energetic and funny, and has the sweetest personality. She has already been hospitalized once at Chapel Hill for a lung infection. The money we raise helps the CF Foundation conduct research for medications that help CF patients stay as healthy as possible, as well as continue research for a cure. It also allows CF families to get financial assistance for medications, which can be very expensive. On behalf of our family, we appreciate your love and support, as well as any donation you can give.
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
You can support me!
By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
FOR YOUR SAFETY AND THE SAFETY OF OTHERS: