Cassie Crumpton

My Great Strides Story

Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them. I also walk for my son, Sawyer!

The Cystic Fibrosis Foundation(CFF) has funded research that literally gives Sawyer an opportunity to live a full life. The goal is to never stop until there is a CURE!

When Sawyer was born, we had him tested for Cystic Fibrosis because pre-natal tests showed that both Matt and I were carriers of the gene. It took 2 months and multiple tests for his results to come back. Due to testing errors, we couldn't confirm why he wasn't gaining weight and why he was struggling to thrive.

Once his CF was diagnosed, we were left with many questions. All we knew up front was that CF was a disease that had a maximum life span of 30-50 years old. Prior to the past 50 years and the research funded by the Cystic Fibrosis Foundation, many children died from CF prior to adulthood. Lung transplants, extended hospitalizations and a poor quality of life were the status-quo. 

Due to the CFF and research funded by the foundation, new gene-therapies are being developed which have drastically changed not only Sawyer's life, but the lives of thousands others battling this genetic disease. Yet many people with CF do not benefit from existing therapies. Our vision is a CURE for every person with cystic fibrosis - a life free from the burden of this disease - and we will not leave anyone behind!

Your donation is greatly appreciated and truly makes a difference to adding days, months and years to the lives of those with CF.  We would love for you to join us at the "Great Strides" Walk on May 4th at Long Leaf Park. Thank you for helping to make a difference!

You can support me!

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.