Dear Friends, please join us this year and every year in our fight for a cure for Cystic Fibrosis for our sweet boy, Worth -- and 30,000 more in the US.
It is thanks to YOU and to the CF Foundation that Worth is as healthy and thriving as he is, BUT living with Cystic Fibrosis still means 30 pills a day for Worth, air compression treatments everyday, and the fear that the next cough or cold could have a real damaging affect on his lungs.
Without the fundrasiing and research efforts of the CF Foundation, Worth wouldn't have had access to the first ever groundbreaking genetic drug for people living with CF. Becauce of it -- and your dollars which made it possible(!) -- Worth has never been healthier! In fact, his lung function is at an all-time high!
But even this week we were reminded of how far we still have to go. Worth got a common cold, which quickly become a deep concerning cough, that required antibiotics, a trip to UNC hospital for a culture, a week out of school, and lots of daily treatment.
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop until CF means Cure Found and all those with cystic fibrosis have a cure.
Please donate to our Winning for Worth team. And help us raise awareness by sharing it with your friends & family & encouraging others to support our fight for a cure for CF.
Together we can make CF stand for Cure Found!
Love, Jen & John