We as a family would like to raise money for the CFF and donate all of Finley's birthday love!! Thank you for helping us make this possible!
Cystic fibrosis is close to our hearts because when I was pregnant with Finley at only 8 weeks, I had routine blood work done. Two weeks passed and we received a voice message from the OBGYN stating that one of my blood tests had come back out of range and that further testing was needed as soon as possible. So immediately, Corey and I started stressing, worrying, and praying.
We followed up with OBGYN as soon as they had an appointment open, and they explained to us that I was a cystic fibrosis carrier and that Corey needed to have his blood work done to determine whether he was a carrier or not. So, we had Coreys blood work drawn and sent off. And then for TWO LOOOOOONNNGGG weeks we went through so many emotions waiting to hear back from the blood work. We called I think daily asking if the blood work results were back and got the same response- it would take two weeks and they would call when the results were in- we still called numerous times.
Then, on a Friday afternoon the OBGYN nurse called and had Coreys results in- HE WAS NOT A CARRIER. We cried joyful tears. It takes two genes- one from the mother and one from the father- for the baby to have Cystic Fibrosis. So for Miss Finley she was in the clear.
But just because she was in the clear did not mean that we wanted to forget about something that had impacted us so much and since I was a carrier, we decided we would keep this close to our hearts and do what we can to help anyone with cystic fibrosis.
Miss Finley is a very lucky little girl and is beyond blessed with toys, clothes, and books. So we hope to collect donations for all of her birthdays and send it to the cystic fibrosis foundation. I have reached out to the foundation and spoke to some wonderful people who have given me the contact information for the local North Carolina chapter that we will be able to send our donations to.
Each year we will have an update on the amount donated!
Love, Corey, Lisa, Finley and Ellie
Also, our beautiful niece , Kyra, has joined our team this year! We are so proud of her.
FYI - Although it has myself, Corey and Finley listed as team members all the money is money Finley has collected! Again no matter who the money is under it is all from our little miss Finley.. it just worked out that I had to be the team organizer to enter the checks in and important things like that!
We will be participating in the walk April 20, 2024 this year as a family!! Please join our team or donate to show your support.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
Please support us!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.