Kaytlyn Caban

My Great Strides Story

This is my niece, Everlee! Here is her story written by my sister in law, Ashley:

“This is Everlee Rose. Looking at her you would never know she has a life threatening disease called Cystic Fibrosis (CF). 

Everlee was officially diagnosed with Cystic Fibrosis on 1/14/21. We are very blessed that Everlee’s case is a very mild case at this point and Everlee has minimal to no symptoms. We still do plenty of preventive care with daily meds and her Vest Treatment done twice a day.

Comes out I am a carrier of the most common CF Mutation F508del and Justin is also a carrier of the CF mutations, but with different variants, R74W, D1270N, and V201M. When both parents are carriers, there is a 25% chance the child will be positive for the disease.”

Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.  

The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. We must keep going.

Your support makes a difference.

By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.