Brionnie Caban

My Great Strides Story

This is Everlee Rose. Looking at her you would never know she has a life threatening disease called Cystic Fibrosis (CF).

Everlee was officially diagnosed with Cystic Fibrosis on 1/14/21. We are very blessed that Everlee’s case is a very mild case at this point and Everlee has minimal to no symptoms. She still does plenty of preventive care with daily meds and her Vest Treatment done twice a day.

Turns out my sister in law and brother are  both carrier’s of the  CF Mutation F508del as well as other variants such as R74W, D1270N, and V201M. When both parents are carriers, there is a 25% chance the child will be positive for the disease.

Did you know there are only about 40,000 people with this disease in the US and only around 80,000 in the world? With such small numbers, there is little funding for research of this disease and most come from donations to the Cystic Fibrosis Foundation. Cystic Fibrosis has come a long way in the past five years and we pray it keeps going till there is a cure.

Any donations would be greatly appreciated or even a prayer for my niece. All donations will go straight to the foundation for research.

Your support makes a difference.

By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.