Justin Caban

This is Everlee Rose. I’m sure you have all seen the numerous pictures and videos we post of her, but today I am going to share a little more than just pictures. Looking at her you would never know she has a life threatening disease called Cystic Fibrosis (CF). 

Everlee was officially diagnosed with Cystic Fibrosis on 1/14/21. We are very blessed that Everlee’s case is a very mild case at this point and Everlee has minimal to no symptoms. We still do plenty of preventive care with daily meds and her Vest Treatment done twice a day. 

Comes out Ashley is a carrier of the most common CF Mutation F508del and I am also a carrier of the CF mutations, but with different variants, R74W, D1270N, and V201M. When both parents are carriers, there is a 25% chance the child will be positive for the disease

My Great Strides Story

Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.

Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

You can support me!

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.