Kim Fullerton

My Great Strides Story

There is currently no cure for cystic fibrosis. By participating in Great Strides, I am helping to end this disease for thousands of people impacted by CF.

Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.  

The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. We must keep going.

My journey with CF started the day my daughter Skylar was born. I heard of CF and never knew much about it. Skylar was born with 2 extremely rare CF mutations. Skylar isn't NOT eligible for any of the modulator's drugs that are out now. They are for specific mutations and her mutations do not qualify for the drugs. Skylar's mutations are so rare that she is the only one in the national CF registry to have both of these mutations. 

This past year Skylar has spoken 5-6 times for the CFF, she has cheered and played lacrosse for her university and is getting ready to graduate college. When she was born, we weren't sure we would see this day as we were unclear as to how sick she would be. While she still is on IV antibiotics roughly 4-5 times a year. She has done many of the above things while she was sick. She refuses to give up and needs a cure. At the end of all of Skylar's speeches she asks 1 question, and I will ask it now. "What will you FIGHT for?  We need a Cure! CF needs to stand for CURE FOUND! Will you please join us in finding a cure?"

You can donate and walk with us on May 18th or please donate to a walker on our team.

Thank you in advance for all your support.

Your support makes a difference.

By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.