Van Perkins was born September 18, 2014 at NHRMC and was diagnosed with Cystic Fibrosis two weeks later via the newborn screening test. Since then Van has been on a daily regimen of medications and physical therapy to keep him healthy.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families. Please join us in our fundraising efforts to find a cure for CF. You can either donate to our Great Strides fundraising campaign or join Team Van as a walker ( or virtual walker if you don't live nearby) and help us raise more donations.
Thank you for supporting the CF foundation and helping us find a cure for little Van the man!
*Donations are 100-percent tax deductible.
A little about the Cystic Fibrosis Foundation:
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for cystic fibrosis. They fund more CF research than any other organization, and nearly every CF drug available today was made possible because of Foundation support. The drug Kalydeco, which Van is now taking is the first drug to target the underlying cause of CF--A faulty gene and its protein product. The foundation also helps families like us afford the medications and treatments that Van needs.
The Foundation's drug development success has been recognized by Harvard Business School and by publications such as Forbes and The Wall Street Journal.
The Cystic Fibrosis Foundation is one of the most efficient organizations of its kind and is an accredited charity of the Better Business Bureau's Wise Giving Alliance.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.