Our Sweet Caroline is a happy, fun-loving, amazing little girl with a big and feisty personality! To just anyone, she appears to be a vibrant, thriving, perfectly healthy child. Thankfully, she is all of these things and more- but she also lives a life fighting daily with a genetic, progressive disease called Cystic Fibrosis. Caroline was diagnosed with CF at only 1 month old after several weeks of doctors appointments, testing, waiting, and being unable to gain weight. Once diagnosed, she was placed under the care of the wonderful CF care team at Brenner Children's Hospital; where she has regular visits with her pulmonologist, respiratory therapist, clinic nurses, and a dietician. We are so thankful for this team of people, along with the CF Foundation who work so hard day in and day out to keep our Caroline and other CF patients healthy and leading happy lives.
Caroline does not live a “typical” life for a 3 year old.An average day in Caroline’s life involves a lot of work to keep her healthy and thriving.
All in a Day’s work
60 minutes each day of Airway Clearance Therapy with her “Shaky Vest” to help break up mucus buildup in her lungs.
2 doses of an albuterol inhaler; morning & night
365 breathing treatments of Pulmozyme each year to help thin the mucus that clogs her body.
30+ Enzyme pills swallowed each DAY (900+ a MONTH) so that her body will grow and develop
PLUS various other daily medications every single day to maintain her overall health.
These numbers will only grow and expand as her disease progresses.
...all of this...just to live 1/2 of a normal life expectancy. The median age of survival for a person living with CF is currently 47 years old. While this is better than it has been in past years, it's just not good enough....
We share this information not for sympathy, but for awareness.Cystic Fibrosis is considered a “rare disease” with only 30,000 cases in the United States; it receives ZERO federal funding. For this reason we, her family, are supporters of the Cystic Fibrosis Foundation (cff.org). The CF Foundation is a donor-supported nonprofit organization and is the world’s leader in the search for a CURE for Cystic Fibrosis.Because of Foundation-driven improvements in research and care, the life expectancy for Cystic Fibrosis has DOUBLED in the past 30 years.
Please support us!
Please consider making a donation to our team, "A Cure for Caroline". Your donation goes towards life saving research that will one day, lead to a CURE for our Sweet Caroline and for the other 30,000 Americans living with this life threatening disease! We would also love for you to join us in walking for a cure at Great Strides on April 24th in Winston-Salem! We want to show our special little girl a HUGE outpouring of love and support on this special day - the weekend before her Fourth birthday!
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.