Robert Miller Goolsby was born on February 9th, 2018. Within 24 hours, Miller's little body presented with some health concerns that led to a hospital transfer and placed him in the Intensive Care Nursery at Duke University Hospital. The next few days were filled with uncertainty, watching, waiting, and testing. At one week old, tests confirmed that Miller had cystic fibrosis.
Miller's first Great Strides was 3 years ago. He had endured 3 surgeries and a 76 day NICU stay and we were still learning about this disease and what it meant for Miller, our family, and our community. We were just beginning to understand the importance of the Cystic Fibrosis Foundation's work and the impact this organization has on those who are touched by CF. The overwhelming support we have received during this event the past 2 years has been a true blessing - highlighting both the sheer size of Miller's community and affirming our knowledge that we can make a real difference in Miller's life and in the lives of all those who are affected by CF.
We walk to celebrate Miller's life and the lives of others living with CF. We would be thrilled for you to consider donating and joining us at this event.
Your donations and presence truly make a difference. There is no way to succinctly capture the full impact that the CF Foundation has had on the present and future of this disease. Within the last decade, research funded by the CF Foundation has led to the discovery and development of an entire new class of medications that works to correct the root cause of this disease. Within the last 2 years, the first generation of these revolutionary drugs has been made available to children as young as 2 years old. For the first time in history, children are able to fight the disease itself and not just symptoms. The future for those with CF is magnitudes brighter today than it has ever been before, and it is getting brighter every day, primarily through the research that the CF Foundation makes possible.
We stride until CF stands for Cure Found.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.