I wish we were having an in person Great Strides walk this year- it's always so fun to see my friends and family come out to support me and those with CF. This year, the event will be virtual, but I still hope you can support me!
What does having CF mean to me?
Well mostly, it means that I have to spend a lot of time doing treatments. I mostly live a completely normal life, except every morning and every evening I spend time doing nebulizer treatments and my vest. My vest looks like a life jacket (it's pink!!!) and shakes me. Shaking helps losen mucus in my lungs and helps prevent me from developing chronic lung infections. My mom lets me watch my ipad while I do these, so it's not so bad. But sometimes I just want to go to bed- I've even fallen asleep while doing my vest before!
It also means I have to take medicine every day and visit the doctor a lot more than my brother. In fact, every month I have to go get 2 shots!! But every time I get, I don't even cry b/c I'm such a big girl! And luckily, they've helped me so much! Last year I spend a lot more time in the school nurse's office getting my inhaler, but thanks to these shots, I don't have to go see her nearly as much (even though Nurse Collins is AWESOME and we are SO VERY thankful to have her!).
I'll have to do my vest every single day, at least twice (sometimes more) and get these monthly shots for the rest of my life. I'm almost at 1,000 hours!!! But thankfully I've been realatively healthy so far. I had one hospitalization when I was just a few months old, but I don't remember it. Hopefully I won't have many more- sitting in a hospital bed doesn't sound fun to me! Although I'm sure i'll charm the nurses into getting me extra jello!
I hope you're able to make a tax deductible donation to the Cystic Fibrosis Foundation too; every dollar helps find an eventual cure for CF!
Click the "Donate to Kennedy" or "Join Kennedy's Team" buttons to help support team Kure for Kennedy!