With so much uncertainty in the world right now due to COVID-19, our annual Great Strides walk has been postponed. The hope is to have one this coming October. In the meantime, the foundation is still fundraising to find that cure for Cystic Fibrosis. Please join our team and continue the fight in finding a cure for Cystic Fibrosis.
Over the last 15 years many advances have be made in finding that cure. Currently 90% of the CF population age 12 and older are benefiting from the latest drug, Trikafta, which was just released November 2019. This is the first triple combination therapy to treat patients with CF. Fortunately, Dylan is apart of that 90%.
Dylan is continuing to do great! He has continued to grow and maintain his health. He is a freshman in High School and had the opportunity to play football and baseball on the JV teams. As mentioned, Dylan is now taking the new pill Trikafa. This is a huge blessing for those with CF. Unfortunately, taking this pill does not take away all the other daily “maintenance” Dylan has to do to stay healthy. He still takes tons of pills throughout the day and does airway clearances, which take up to 1.5 hours.
Even though we are not meeting as a whole, I’m asking you to help us continue to fight for that cure. If you would like to support the Super Dylan team by making a donation you can simply click on the link to make a tax-deductible donation to the Cystic Fibrosis Foundation and make a difference.
We thank you for all your love and support.