Thank you so much for visiting our Grayton's Guardians of Raleigh Page! We are back to walk in honor and support of Grayton and all his buddies who fight this difficult disease daily. I did not know a thing about CF until my friends boy was diagnosed 10 days after his birth. We have come a ong way and with your help will continue to persue finding a cure.
Grayton's daily regimen involves taking pills (540 pills a month) before each meal in order to give his body the ability to absorb the fat and nutrients from food. Putting on weight is a constant challenge for those living with cystic fibrosis, especially for G as his pancreas has no functionality. Twice everyday he does his breathing treatment and an airway clearance treatment called CPT (Chest PhysioTherapy). He wears a vest that's connected to a machine that will shake him to help move the mucous in him lungs. He spends 30 minutes twice a day strapped to this machine (30 hours a month). As you can imagine, it’s a challenge to keep a 5 year old entertained and constrained during this time. His favorite vest time activities include stacking shapes/blocks and reading a book about trucks….especially backhoes! Dada is also trying to get him to play a harmonica to help with lung capacity. I secretly think, he just wants Grayton to jam with him while he plays the guitar. He also take an acid blocker 2X's a day and liquid multivitamin are also necessary to his daily routine and weight management.
There has been so much development in the last few years and we want to continue that momentum by adding tomorrows to all of those living with CF. The real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, we are helping add tomorrows to the lives of people living with cystic fibrosis. Will you join us? Support us by making a donation to our Great Strides fundraising campaign today!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Ways to Help
To walk with us: click on the 'Join our team' button and select 'walker'. From there you can make a donation and/or start your fundraising. Joining our team does not require a donation or fundraising, however, fundraising IS encouraged! The more resources we have for research the better!
To donate: Search for Grayton's Guardians Great Strides Atlanta 2021 to make your donation or select a team member from the list below. All donations are tax deductible.
To Help us fundraise: Click on the 'Join my Team' button and select virtual walker. You folks are our online force who are driving donations in your community and diligently bringing in money. Once you register you will then be given a link that you can share with friends and family.
Help Share Grayton's story: Telling Grayton's story is HUGE in educating others that a cure is needed and even better when a face is put with the cause.
Your support and donations are giving us everything our family needs-more memories with our Grayton.
Thank you so much for your support!
Jackie, Eric, Zachary and Jake