Thank you for visiting our page for Grayton Pinkston. At just 10 days old, he was diagnosed with cystic fibrosis through a newborn screening. With no family history of this genetic disease, it came as a shock to the Pinkston & Dean families. As a way to support our friends, Grayton’s Guardians was formed. There is no cure for this terrible disease and raising money is the best way for us to help! There are Guardians all around the county and we are excited to be walking as a team in the Raleigh Great Strides Walk on May 16th! Please join us at this family friendly event!
From Grayton’s Mom and Dad:
Grayton's daily regimen involves taking pills (540 pills a month) before each meal in order to give his body the ability to absorb the fat and nutrients from food. Putting on weight is a constant challenge for those living with cystic fibrosis, especially for G as his pancreas has no functionality. Twice everyday he does his breathing treatment and an airway clearance treatment called CPT (Chest PhysioTherapy). He wears a vest that's connected to a machine that will shake him to help move the mucous in him lungs. He spends 30 minutes twice a day strapped to this machine (28 hours per month). As you can imagine, it’s a challenge to keep a 3 year old entertained and constrained during this time, especially when all he wants to do is play with his little sister, Ruby Raye. His favorite vest time activities include stacking shapes/blocks and reading a book about trucks. Dump trucks and tractors are his favorite! Dada also taught him to play a harmonica to help with lung capacity. I secretly think, he just wants Grayton to jam with him while he plays the guitar. He also takes an acid blocker 2X's a day and liquid multivitamin are also necessary to his daily routine and weight management.
There has been so much development in the last few years and we want to continue that momentum by adding tomorrows to all of those living with CF. The real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, we are helping add tomorrows to the lives of people living with cystic fibrosis. Will you join us? Support us by making a donation to our Great Strides fundraising campaign today!
Thank you so much for your support!
Jackie, Eric, Zachary and Jake