Our Sweet Caroline is a happy, fun-loving,amazing little girl with a big and feisty personality! To just anyone, she appears to be a vibrant, thriving, perfectly healthy child. Thankfully, she is all of these things and more- but she also lives a life fighting daily with a genetic, progressive disease called Cystic Fibrosis. Caroline was diagnosed with CF at only 1 month old after several weeks of doctors appointments, testing, waiting, and being unable to gain weight. Once diagnosed, she was placed under the care of the wonderful CF care team at Brenner Children's Hospital; where she has regular visits with her pulmonologist, respiratory therapist, clinic nurses, and a dietician. We are so thankful for this team of people, along with the CF Foundation who work so hard day in and day out to keep our Caroline and other CF patients healthy and leading happy lives.
Caroline will be 2 years old this April, 2018. Each morning and evening, she sits through two 30 minute sessions of Vest Therapy ("Shaky vest time") with her Incourage vest system, along with using an albuterol inhaler. Upon her 2nd birthday, she will add daily nebulizer breathing treatment to her routine. These treatments help to break up mucus in her lungs and airways, keeping her breathing easily! If Caroline has a cold or increased cough, these treatments are doubled- resulting in 2 hours spent on therapies each and everyday. In addition, Caroline takes upwards of 30 pills a day (enzymes each time she eats) to aid her body in proper digestion; as well as 3 additional medications morning and night. all of this - just to live 1/2 of a normal life expectancy. The median age of survival for a person living with CF is currently 47 years old. While this is better than it has been in past years, it's just not good enough....
We are incredibly thankful for the life lengthening research made possible year after year by the Cystic Fibrosis Foundation. Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. Call us stubborn, but we will never stop fighting until there is a CURE!
By walking in Great Strides, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join us?
Please support me!
Help me reach my fundraising goal of $5,000 by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.