Abby's Army marches again! It is that time of year again when we ask you to dig into your pockets and help support our fundraising efforts to raise money to help us find a cure for cystic fibrosis. Abby's Army is marching for the thirteenth (!!) time, and every year we are absolutely blown away by the support you show. While we feel your love and support all year long, it is this time every year when we ask that you support us through fundraising and through dollars donated. We are truly humbled by your support, and how you give year after year to help us make a better life for our little girl.
Abby continues to fight CF like the champion she is. She does breathing treatments for at least an hour and a half every day, takes 13 enzyme pills to help her digest her food, and takes various other medications to deal with all of the other havoc that CF wreaks on her body, including her sinuses, stomach, and liver. Before anyone else sees her in the morning, she's already spent at least an hour taking care of her medical needs. This is every single day. She had sinus surgergy earlier this year, the third in her life. And, this cold and flu season has been a tough one, taking her to the doctor every couple of weeks and skirting a few hospital admissions by the skin of her teeth.
We long for the day when a medication will be available to treat the underlying cause of the disease and not just the symptoms. We need a real game changer here and we are so happy to say that there may be one on the market to help Abby as early as next year. But, it will not be a cure and there is no guarantee that it will help her to a great degree. We need a cure and we need it fast. We say it every year, but it bears repeating: Abby is in a race against time.
When the CF Foundation was founded, life expectancy for children with CF was only five years old. Many didn't make it to kindergarten. In large part, due to donors like yourself, the median life expectancy is now 41 and rising. But CF is mean and heartless, and often doesn't play fair. There are still children and young adults that are taken from us well before that age. Many of those fighting CF into adulthood waste far too much of their valuable time and energy in simply staying alive. We long for the day when these amazing adults can just live without fighting for every breath. That is why we continue, day after day, to fight CF. That is why we continue, year after year, to ask you to donate to our cause.
Abby's Army means so much to Abby. If you are able to walk with us, Abby is walking in Huntington Beach on May 18. Kids and adults are all welcome, and there is no minimum amount required to raise. Your support in both time and/or money would mean the world to us.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.