Cystic fibrosis (CF), a chronic, progressive, and ultimately fatal disease currently affects more than 70,000 people worldwide. With approximately 1,000 new cases of CF diagnoses each year, it is clear there needs to be a change.
These are babies, sons, daughters, mothers, fathers, friends, and loved ones to many. To us, he is Joel. For his entire life, Joel has had a routine that includes various medications, IVs, breathing treatments, hospital stays for several weeks at a time, intense surgeries, and overall anguish. Each day, he requires an oxygen tank due to a low funtioning lung capacity, and extreme fatigue. He uses a feeding tube to ensure he receives the necessary amount of calories and nutrients for survival. In spite of all this, he remains hopeful, and in good spirits and our hero.
We want nothing more than to see him and the thousands of people dealing with CF smile anthor day.
Help us add tomorrows by joining our team and donating today :) Even if you can"t participate in the walk, any amount helps.
Thank you to everyone. We appreciate your support.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.