Cystic fibrosis (CF), a chronic, progressive, and ultimately fatal disease currently affects more than 70,000 people worldwide. With approximately 1,000 new cases of CF diagnoses each year, it is clear there needs to be a change.
These are babies, sons, daughters, mothers, fathers, friends, and loved ones to many. To us, he is Joel. For his entire life, Joel has had a routine that includes various medications, IVs, breathing treatments, hospital stays for several weeks at a time, intense surgeries, and overall anguish. Each day, he requires an oxygen tank due to a low funtioning lung capacity, and extreme fatigue. He uses a feeding tube to ensure he receives the necessary amount of calories and nutrients for survival. In spite of all this, he remains hopeful, and in good spirits and our hero.
We want nothing more than to see him and the thousands of people dealing with CF smile anthor day.
Help us add tomorrows by joining our team and donating today :) Even if you can"t participate in the walk, any amount helps.
Thank you to everyone. We appreciate your support.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.