Our dear family and friends, We hope 2020 is off to a happy and healthy start! We are all doing well and have an important request for your consideration.
We humbly ask for your help in supporting the COWABUNGA CHAMP and the CF community again this year. With your generosity, last year we raised close to $20,000 and Great Strides Dana Point saw the highest percent growth increase over prior years, compared to all other 16 chapter events! This is incredible and we are so appreciative- THANK YOU!
Just a few months ago, a breakthrough drug, Trikafta, was released and has been truly life changing for adults with CF. While Joey is too young for this drug now, based on his genetic makeup, he should be able to start it (or something even better!) when it’s approved for children in the next couple years. It is because of your generous support and prayers that these tremendous possibilities exist for Joey and thousands like him. Joey hasn’t yet started any new medications, but he still uses his physiotherapy vest twice daily with his nebulizer treatments. It was support from generous donors like you that supported the research to develop these “lifestyle” therapies that keep him healthy during the tricky winter season.
Joey loves riding his bike, swimming, running and playing at the beach, which are all great exercises for him. He is an active, happy and thriving four year old!
We are encouraged by the CFF that there are even better approaches in the pipeline! Donations fund science. Science finds cures. Please help us raise funds to find a cure, for Joey and so many others. Sadly, 10% of CF sufferers have no available therapies for their condition. We continue the fight for them as well.
There are two ways to support or become a member of our team - either by joining the team as a virtual walker or helping us meet our individual goals by donating to a specific walker. By becoming a member of our team and helping us raise funds, you are joining a growing group of people committed to finding a cure for cystic fibrosis.
Truly, no donation is too small as $1 per person adds up- it just might be the dollar that buys the test tube that matches an antibody to fight a resistant bacteria that causes lung damage! Your donation is 100% tax deductible!
Many, many thanks! Please know how much we appreciate your thoughtfulness, and help spread the word by sending this note to your friends/co-workers/teammates/etc.
With much love and tremendous appreciation, Joey's fans
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.