Please join our team to walk or donate for a cure for cystic fibrosis. Walking helps support research that will affect the future of Claire's care and others that live with CF. Claire started a modulator drug called Orkambi and has been doing so well but she is still showing manifestations of CF in her lungs and has constant GI issues. Another drug, Trikafta, is approved for 6 and up and is changing the lives of many adults with CF but we are still waiting for it to be approved for her age category. Many with certain CF mutations do not have an available drug and even these amazing drugs are NOT a cure. I try not to think about it but Claire still only has a 50% chance of making it to 50 years old. For that reason, we will continue to fundraise until everyone with CF has drugs and/or a cure available to them.
By joining our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Any amount helps whether its $5 or $500.
We will not rest until all those with cystic fibrosis have a cure. The time is now. Together, we can conquer this disease.
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF -- join our team today!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.