We are raising money again this year in the fight against Cystic Fibrosis, the devastating genetic disease that causes a build up of mucus in the lungs leading to life-threatening infections. It also causes serious issues in many other organs of the body such as the pancreas, liver, kidneys, and reproductive organs. There are approximately 30,000 Americans living with cystic fibrosis. Our precious little boy, Ethan (age 10), is one of those individuals. Each day is a continual struggle to keep him healthy and able to breathe freely. Germs are everywhere and pose a serious threat to those with CF. Ethan has been hospitalized multiple times throughout his ten years of life and every day continues to be a battle to keep him healthy. His current treatment plan includes 2-4 breathing and airway clearance treatments daily to help him rid his lungs of mucus.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. Currently, the life span of those with CF is 37 years old. Our dream is to see Ethan live well beyond those 37 years and have a healthy and happy life along with his siblings. Since there is still no cure for this disease, we have to keep fighting each and every day so our boy can have all the opportunities that others have.
Would you consider making a donation on behalf of Ethan? Any amount is so appreciated!! Your gift is 100 percent tax deductible. It can bring us one step closer to receiving the cure we want more than anything else in the world. God is good and he is continuing to take care of Ethan along the way. With your help, we can help save more lives and reach that cure very soon!
Thank you all so much, your support means so much. God Bless!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.