It certainly has been an eventful year. We have been blessed with good health and everybody is doing well. We pray the same is true for you and your families.
We humbly ask for your help in supporting the COWABUNGA CHAMP and the CF community again this year. Last May, Champ began Orkambi, a drug that will hopefully maintain status quo, until he’s eligible for Trikafta.
It is with much hopeful anticipation that Trikafta will soon be approved for children ages 6 years and older. This drug has been called life-changing for many, and we are eager for our Champ to have the opportunity to take it. It is because of your generosity and support over the years that the discoveries have been made to identify this medication that greatly restores function of the defective protein that causes CF. We are so grateful and humbled by your support, and thank you from the bottom of our hearts.
The fight is not over, and the Cystic Fibrosis Foundation continues to work toward full eradication of CF from the world. There are still many who don’t have effective therapies and some struggle to manage the care required for their loved ones. Funds raised today go to support efforts like these and to fund research to better understand the long-term impacts of newly approved medications like Trikafta.
We know it’s been a hard year for many of us, but truly no donation is too small. Your donation is 100% tax deductible! Every dollar makes a difference and directly impacts the fight to eradicate CF.
Please know how much we appreciate your thoughtfulness and support!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.