Alicia Seinturier

My Great Strides Story

Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. Quinn happens to be one of them.  Knowing your child has a life expectancy shorter than you, is gut wrenching.  

Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Quinn was one of those for the first three years of life. She happens to have a rare mutation that prohibited her from qualifying for certain medications. In June of 2023, she was given the opportunity to take a life changing medication. While her new medication is supposed to prolong her life, it has also come with some challenges.  Our goal is to find a cure for all. To make sure that everyone in the CF community is able to live a normal and healthy life without any side effects. 

You can support me!

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. We want people like Quinn to be able to breathe freely while playing and not spend her life doing treatments/hospital stays.  Please consider joining us and help make medical history.