Our dear family and friends,
It certainly has been an eventful year. We have been blessed with good health and everybody is doing well. We pray the same is true for you and your families.
We humbly ask for your help in supporting the COWABUNGA CHAMP and the CF community again this year. Last May, Champ began Orkambi, a drug that will hopefully maintain status quo, until he’s eligible for Trikafta.
It is with much hopeful anticipation that Trikafta will soon be approved for children ages 6 years and older. This drug has been called life-changing for many, and we are eager for our Champ to have the opportunity to take it. It is because of your generosity and support over the years that the discoveries have been made to identify this medication that greatly restores function of the defective protein that causes CF. We are so grateful and humbled by your support, and thank you from the bottom of our hearts.
The fight is not over, and the Cystic Fibrosis Foundation continues to work toward full eradication of CF from the world. There are still many who don’t have effective therapies and some struggle to manage the care required for their loved ones. Funds raised today go to support efforts like these and to fund research to better understand the long-term impacts of newly approved medications like Trikafta.
We know it’s been a hard year for many of us, but truly no donation is too small. Your donation is 100% tax deductible! Every dollar makes a difference and directly impacts the fight to eradicate CF.
Please know how much we appreciate your thoughtfulness and support!
With waves of gratitude and oceans of love…