Dear Friends and Family,
Thank you so very much for your incredible support of our Cystic Fibrosis Foundation Great Strides walks over the years! (And welcome to any new friends!)
We’re asking once again for your support because our 14-year-old friend Abby still has cystic fibrosis (CF), a devastating genetic disease that can make every breath a struggle. We can't walk in person this year because of the pandemic, but we still need your help to raise the funds necessary to find a cure.
Abby is in the high risk category for COVID-19, so she has spent her entire eighth grade year at home, doing as many activities as possible in a virtual format and waiting anxiously for a vaccine to be approved for her age group. (UPDATE: Abby got her vaccine! Hooray!)
But there's also something to celebrate. Since December 2019, Abby has been on Trikafta, a medication that treats CF at the cellular level. Abby's lung function increased almost immediately after she started taking Trikafta, and she has finally been able to gain a significant amount of weight. In previous years, Abby would need to see a doctor every other week and be admitted to the hospital multiple times. With the combination of Trikafta and extreme social distancing, this past year has been the healthiest of Abby's life--she hasn't even had a cold. Trikafta was developed after decades of work and hundreds of millions of dollars in financial support from the Cystic Fibrosis Foundation, including contributions from donors like you!
So why must the fundraising work continue? As wonderful as Trikafta is, it is not a cure, and its lifetime effects are unknown. Despite her progress, Abby still spends an hour of every day doing breathing treatments. She still has to take handfuls of pills just to digest her food. She still has to use a feeding tube at night to take in enough calories to survive. And 10% of the CF population still has no effective treatment to help correct the basic defect of CF. For those patients, there is no daily medication like Trikafta even on the horizon.
The CF Foundation was founded by a group of parents in the19 50s because their children were dying before kindergarten and they refused to accept that fate. It's thanks to their commitment that a breakthrough medication like Trikafta was possible for Abby, and Abby's family and friends are committed to supporting the CF community until there is a real cure for CF, for everyone.
Thank you again for your help--it means so much to us and to Abby and her family.
Emily, Rob, Maia and Phoebe
P.S. Please check if your company offers matching donations--many do!