My daughter Gwena was born with cystic fibrosis, a genetic disease that affects every cell of her body, but has the most devastating effects on the lungs and digestive system. She's 14 now, and has to take 20+ pills a day, do 2 half-hour breathing treatments a day, and attend frequent medical appointments, tests, and blood draws to manage this condition. In November 2023 she was hospitalized for several days because of a lung infection.
Through the tireless efforts of the Cystic Fibrosis Foundation, she has been blessed with cutting-edge treatments for CF which have been developed during her lifetime, and which have drastically changed the prognosis for Gwena and thousands of others like her. However, there is still much research to be done. There is still no cure and many people with CF are not able to benefit from these new treatments.
Our team is fundraising for the Long Beach Great Strides walk this year, raising money for further cystic fibrosis research. Please consider making a donation to help me reach my fundraising goal. With your help, we can reach the finish line and make CF stand for Cure Found!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.