Dear Family, Friends and Colleagues,
It's time for the Great Strides Cystic Fibrosis Walk again! On June 8th, 2024, the Clark family will be participating in the Great Strides walk to raise money for Cystic Fibrosis research. This is a cause that hits close to home because my daughter, Elizabeth, has Cystic Fibrosis. Every day Elizabeth takes more than 40 pills, does hours of chest therapy and breathing treatments, and yet despite all the work she puts into trying to maintain her health, she still gets sick. She is still spending weeks out of the year in the hospital and hours upon hours at doctor's visits.
We are thankful for the research that is being done to find a cure for Cystic Fibrosis, in fact there are now amazingly effective treatments for about half the people with CF. Elizabeth has been able to benefit from one of these new treatments called Trikafa. This new drug has given Elizabeth some relief, but because it is not directly targeted for her specific mutations, its is not giving her the results that some other CF patients are experiencing.
As Elizabeth’s hospitalizations become more and more frequent, and her lungs, liver, pancreas, and kidneys deteriorate, our family realizes that the need for a cure is now urgent. Just this year she had Gall Bladder surgery and will need a kidney procedure.
We thank you for contributing to the Cystic Fibrosis Foundation, as all significant funding for CF research is funded by the CF Foundation. Over 90 cents of every dollar donated to the CF Foundation goes toward research for treatments and the cure. It is hard to ask for money, but as a friend pointed out to me today, there is a direct correlation between money, research and a cure. Please help us to make CF stand for Cure Found!
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
You can write a donate directly at:
Thank you very much!
The Clark Family
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.