Cystic fibrosis affects over 30,000 Americans today. On Saturday 5/16 in we are walking in honor of miss Anastasia Rose! Ana is 2 years old & so full of life! She loves ballet, gymnastics, playing outside, horses, rainbow goldfish, all things girly, Disney, & her kitty Elsa.
Ana was diagnosed with Cystic Fibrosis at birth. CF has had a huge impact on our lives ever since. Ana takes 6 medications daily & uses a vest for chest physiotherapy to help keep her lungs clear, but she doesnt let any of this slow her down. She has had one serious hospital stay, but new medications have kept us mostly healthy and able to get over common illnesses quicky since! We are so grateful for the knowledge God has provided to make modern medicine possible. There is currently no cure for CF but new treatments are making the lives of those with cf longer & more fulfilling everyday!
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.