In September of 2001 at just 12 weeks old, Al Lee was diagnosed with Cystic Fibrosis, the same condition his cousins Donnal and Michelle were born with. Cystic Fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). Those with CF spend hours a day doing breathing treatments, take numerous medications and frequently have lengthy hospital stays to treat lung infections and other complications.
In 2005, just weeks before his 24th birthday and a little over a year after having a double lung transplant, Donnal lost his fight against CF. Michelle passed away just a few days before Christmas in 2017 after a 2 month hospital stay battling a serious lung infection and complications affecting her heart She was only 29. They left behind loved ones who miss them every day and will never stop wondering what their lives could have been without this terrible disease. Without private donations to fund research, many more precious lives will be lost.
The last few years have been difficult for Al with a dozen hospital stays and many painful medical procedures, but he continues to have faith that things will get better for children and adults with CF. Although there is currently no cure, thanks to breakthroughs in research supported by fundraisers such as Great Strides, there are many new drugs in development that could potentially help people with CF lead longer, healthier lives.He is about to begin taking Trikafta, the new triple combo therapy approved last November which has the potential to greatly improve lung fuction and reduce hospitalizations for 90% of people with cf, but we believe help will soon be possible for everyone with this disease. That is our team theme this year- We believe! We believe with fundraising, increased awareness, research and advocacy, a cure will soon be found.
Please consider supporting the Cystic Fibrosis Foundation by making a donation to our Great Strides fundraising campaign today! Your gift is 100-percent tax deductible, and 90 cents from every dollar goes directly towards supporting life-saving research and medical progress. If you would like to sign up as a walker, we would love to have you on our team. Thank you for helping add tomorrows to the lives of people with cystic fibrosis.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.