Shannon was diagnosed with cystic fibrosis when she was born in 1987. At that time the life expectancy for a chlid with cystic fibrosis was 18 years old; Shannon will be celebrating her 32nd birthday in July of this year! The research by the CFF medical therapies/drugs discovered in her lifetime have allowed Shannon to not only live 32 years but have a highier quality of life. We walk to continue the advancement of lifesaving research and medical programs. We will not stop until a cure is found for all people living with cystic fibrosis!
In November 2019 she was able to start Trikafta, a new cystic fibrosis triple drug medication! This drug has had amazing results in trials and she is very excited to see how it works for her.
To become a member of our team, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. We will not rest until all those with cystic fibrosis have a cure. The time is now. Together, we can conquer this disease.
Follow Shannon's cf story on Instragram (@shannons65roses) to learn more about her life living with cystic fibrosis.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.