In February of 2020, Tamsyn had her first hospitalization related to Cystic Fibrosis. A routine CF clinic revealed that her Pulmonary Function had dropped from the 90s to 53%. After a ten day stay in the pediatric wing, Tamsyn was released on intravenous antibiotics. Following her hospitalization, Tamsyn's lung function took a drop into the 80s and stayed there for over a year. On July 4, 2021, Tamsyn took her first dose of Trikafta. Fast forward a year and a half, today Tamsyn blew a 130% on her PFTs. We also found out today that because of this life-giving medication, Tamsyn can stop her daily breathing treatments. Just three years ago, Tamsyn was on four separate inhaled medications in addition to her daily pill collection and chest therapies. These medical advancements are changing Tamsyn's life, but Trikafta does not work for everyone, and no matter how great it is, it is still not a cure.
With your help, we can continue to fund the research that leads to these treatments that will hopefully allow CF to one day stand for Cure Found. If you would like to come out and walk this year, we would love to have you! If you can't walk, then please feel free to donate. Every little bit helps in the fight against CF! Our first nine years with Tamsyn have been amazing, and we want many more years with our beautiful daughter! Let's kick CF! Join our team and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.