Dear Friends and Family,
I am so proud of our daughter Emma for once again stepping up to serve as team leader for Leann's Legion of Believers for Great Strides to benefit the Cystic Fibrosis Foundation (CFF).
This year, we will walk in Charleston on May 18.
Since our eldest daughter Leann passed away from complications from cystic fibrosis (CF) nearly 5 1/2 years ago, the CF Foundation has been instrumental in bringing forth transformative medicines for much of the CF population. While this is remarkable progress, not everyone with cystic fibrosis benefits for reasons ranging from side effects to their CF genetic mutation not responding to the drugs. This is why we are not done fighting CF.
And while better medicines are surely fantastic, they are not a cure. Though Leann will not benefit from new advancements in treatments and a cure (yes, I do believe we will cure CF one day), it does not change our passion and sense of urgency that we want the very best for everyone with CF.
There are so many worthy causes to support. If you can, please help those with cystic fibrosis and their families know we stand with them Until It's Done.
http://fightcf.cff.org/goto/scotrittenbaum
Respectfully and gratefully,
Scot
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.