Why am I doing this?
With 50 years of T1D on the books, I knew there was potential for organ damage but nothing prepared me for the effects of a simple respiratory issue that overwhelmed my healthy heart and kidneys but I was never so terrified as when I couldn’t breathe while hospitalized. Now I can’t imagine what life for a child with CF’s breathing challenges, as well as other organ threats, especially my favorite - the pancreas, could be like. Thanks to the CFF’s novel fundraising approach, the resulting treatment advances in the 3 1/2 years since Cullen was born make me hopeful the impact on his life will lessen, if not eventually dissipate, and that’s why I joined Team Cullen. Please swing by the Team Cullen page to learn a bit of what's involved in his daily life and what his admirable parents and my cousins Ashley and Mike have done to ensure Cullen thrives
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Obviously I can't be in Charleston 4/29 so I've been participating virtually at pulmonary rehab, already covered 5 miles. In case anyone wants proof I'm not camped in my recliner popping cold ones counting sponsorship as it rolls in, I’ve got it!
Mike and I were once reminded of my Dad's favorite movie Christmas Vacation and Aunt Bethany became our go to laughing point in both good and bad times. Please consider assisting Aunt Bethany help others breathe wind as well as she breaks it!
Thank you in advance for your support whether it be financial, spiritual or a green jello mold ; )
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.