
As some might know, my daughter, Aubree, was born with Cystic Fibrosis. She will turn 2 years old in July. We are learning about this disease more and more every time we take her to the Cystic Fibrosis clinic at MUSC. She gets blood work almost every month, and something is always off , iron level, liver enzymes, and any of the vitamins. Aubree's digestive track doesn't absorb nutrients making her take about 5 enzyme pills before she can eat. Try to tell a 1 year old they can't have a snack without her enzyme. Her lungs build up with mucous, which makes it hard to breathe. Aubree gets 5 breathing treatments a day. Try to tell a 1 year old to sit on the couch twice a day for 45 mins with a mask over her face and then beat on her back and chest with a suction cup for 15 to 20 mins. I have watched Frozen and Sing more than you would know. At least there is a Frozen 1 and Frozen 2 and Sing 1 and Sing 2
Aubree is my tough little girl. She will always have to fight. Tara and I will never stop fighting for her. CF never goes away, and there isn't a cure. There are only about 30,000 people in the U.S. with CF. The Cystic Fibrosis Foundation has made great strides to make this tolerable and expand their life. They have treatments that help build cells that CF patients body's can't produce. They need donations for research and medicines. Anything donations will help. Please share this post. The walk is April 29th at wannamaker park. If you want to walk, please let me know, and you can sign up under my team Aubree's Angels. Then, you could set a goal with your teammates for Aubree.
I will never give up on Aubree and she will not fight this disease alone.
https://fightcf.cff.org/site/TR/GreatStrides/116_South_Carolina_Charleston?px4950180&pgpersonal&fr_id9714
Thank you
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