I've learned so much about Cystic Fibrosis in 20 months, since my daughter was diagnosed at 2 weeks old. I've learned about enzymes she needs to take with food to absorb her nutrients. I've learned about meds that open the airway and meds that thin the mucous, and chest PT to loosen the mucous. I've learned about throat cultures and organisms to try to avoid. I've learned about inhaled antibiotics. I've learned that pregnancies in the cf population are increasing while the overall pregnancy rate in the U.S. has decreased. Most importantly I've learned that the mean age to survive for those born between 2016 and 2020 is 53. While I think this is amazing, I also think, she can have a family but may not live long enough to see her kids have a family.
Although I'm so grateful for the progress and advancements in treatments that has been made for those who have CF so far but there is still no cure for this devastating disease. Too many lives are cut far too short. We’ve come so far, but there’s still so much work to do. This foundation supports the research and treatments needed, giving families more time together, giving those with cf opportunities that they wouldn't otherwise have. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!
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