My nephew, Coleman Principe, was diagnosed with cystic fibrosis when he was two weeks old. He is now a vibrant, smart, talented, and engaging 3 year old with a vivid imagination who loves spending time with family and friends, playing with cars and trucks, singing and dancing, and being outside and active. CF is part of Coleman’s life, but his parents do a wonderful job of trying to make that part of his life as small as possible.
Cystic fibrosis (CF) is a rare, genetic, life-shortening disease that affects the lungs, pancreas, and other organs, and no cure exists. However, scientists have made significant progress in the search for a cure, especially in recent years, and we have real reason to hope that, with enough funding, these scientists will develop drugs that eliminate or drastically reduce the symptoms for most or all those with CF in the coming years. The research and drugs being developed through the backing of the Cystic Fibrosis Foundation are Coleman’s best chance for a normal and long life. In 2019, the FDA approved a triple-combination drug therapy to treat the underlying cause of cystic fibrosis which will reach 90% of those living with CF. While this approval is only for ages 12+, Coleman will likely have access to this life-changing drug in the near future.
Please support Coleman for the Cure by walking with us virtually on the weekend of SEPTEMBER 19, 2020 and/or donating to the CF Foundation. Select "Visit My Team Page" for more information. We would love for you to join us.