Meet Coleman! This almost three-year old ray of sunshine brings so much joy and love to our family and to all that know him. In April 2017, at two weeks old, Coleman, was diagnosed with cystic fibrosis (CF), a rare, genetic, life-shortening disease that affects the lungs, pancreas, and other organs. CF is part of Coleman’s life, but his parents, Julia and Ryan Principe, are doing everything they can to make that part of his life as small as possible.
No cure exists. However, scientists have made significant progress in the search for a cure, especially in recent years, and we have real reason to hope that, with enough funding, these scientists will develop drugs that eliminate or drastically reduce the symptoms for most or all those with CF in the coming years. The research and drugs being developed through the backing of the Cystic Fibrosis Foundation are Coleman’s best chance for a normal and long life. In 2019, the FDA approved a triple-combination drug therapy to treat the underlying cause of cystic fibrosis which will reach 90% of those living with CF. While this approval is only for ages 12+, Coleman will likely have access to this life-changing drug in the near future.
Under the leadership of Coleman’s fiercely passionate and determined parents, Team Coleman for the Cure has been the largest and top fundraising family team in South Carolina for the past two years and has raised over $70,000 for the Cystic Fibrosis Foundation. With your support, even more can be done to advance the work of the Foundation to advance medical breakthroughs in the treatment of CF, like the approval of Trikafta.
This year, I will again be joining Team Coleman for the Cure again on Saturday, May 2nd for Great Strides Columbia. Please consider joining us or making a donation to support the Cystic Fibrosis Foundation. Thank you in advance for your consideration and support!