Hi! My name is Dana Rose. I have cystic fibrosis. But even more important than that I am a happy little girl that loves spending time with my family, playing with my dolls, watching football, and spending time outside.
Everyday I take over 30 pills and do at least 2 breathing treatments. Breathing treatments consist of 30 minutes of getting vibrated by a vest to help break up the mucus in my lungs and 2 nebulized medicines that also help me get rid of the mucus and open up my airway.
Even though I have to take so much medicine. I am just a happy 6 year old little girl that loves playing with my brother and cousin, loves anything disney, and loves going outside.
Thank you for reading my story. Please support my fundraising campaign so that researchers can find a cure for me and everyone else like me. Please help me to have many more years to continue to grow and play and just be a kid.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Please support me!
Please help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to my life by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To help minimize the risk of COVID-19, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Please be advised certain localities and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you are feeling ill or have been recently exposed to COVID-19.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.