Being a mom to a child with cystic fibrosis can be challenging. There are therapies to learn, lots of medical terms to get to know, accomodations to be made to fit in breathing treatments, doctors appointments and hospital stays, and most of all, anxiety and worry over "what ifs."
There are also positives, such as celebrating milestones that would otherwise be taken for granted, getting to know amazing doctors, nurses, respiratory therapists and other medical experts who want my child to be as healthy as possible, feeling the love, support and prayers from my friends and family when there is a medical crisis, and learning about all the promising research towards a cure from my very own daughter, Rhianna, who became a cf researcher out of her love for her little brother.
This research is what the Cystic Fibrosis Foundation funds with the money raised from their events such as Great Strides. There has never been as many new drug combinations in the pipeline that can help improve the quality of life for those living with cf or that can help such a large percentage of the cf population as there are right now, and scientists are exploring ways to treat the defective genes themselves instead of just managing symptoms.
Our team theme this year is "We believe..." Instead of focusing on all the negative "What ifs", we will have comfort in the belief that we will soon find a cure and that one day, no child born with Cystic Fibrosis will have to suffer the consequences of this horrible disease. Please consider making a donation to help make this a reality. Any amount would be greatly appreciated! Help us make CF stand for "Cure Found"