I've learned so much about Cystic Fibrosis in 2 1/2 years since my daughter was diagnosed at 2 weeks old. I've learned about enzymes she needs to take with food to absorb her nutrients. I've learned about meds that open the airway and meds that thin the mucous, and chest PT to loosen the mucous. I've learned about throat cultures and organisms to try to avoid. I've learned about inhaled antibiotics. I've learned that pregnancies in the cf population are increasing while the overall pregnancy rate in the U.S. has decreased. Most importantly I've learned that the mean age to survive for those born between 2016 and 2020 is 53. While I think this is amazing, I also think, she can have a family but may not live long enough to see her kids have a family.
Aubree is healthy today because of all the advancements today and I'm grateful for that. I remain hopeful that a cure will be found!
This foundation supports the research and treatments needed, giving families more time together, giving those with cf opportunities that they wouldn't otherwise have. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.