Savannah Fuller

My Great Strides Story

Even on the hard days, I still pinch myself that I get to live such an awesome life thanks to the Cystic Fibrosis Foundation and all parties that made Trikafta possible.

At 21 years old I was basically bed ridden. My own lungs were smothering me with infection and scar tissue. I had about 25% airway capacity (‘normal’ is 100%), my right lung had started hemorrhaging and I spent my days practically living at the pulmonologist just hoping that eventually I would get new lungs in time.

When I started Trikafta in November of 2019, I literally felt my airways open and, for the first time in my then 21 years of life, I actually knew what it felt like to take a deep breath. My lung function increases from 25% to 60% in one month and 4.5 years on I’m still practically asymptomatic and am living a life I literally could only dream about not so long ago. I get to live in a beautiful city, in a beautiful apartment and work in a beautiful restaurant with some of the best people I’ve ever had the pleasure of knowing. And it’s all thanks to years of dedication from the CFF and countless others. So y’all should stop and smell the roses today because they smell pretty sweet ❤