The Rolling Sloanes are raising money in honor of Sloane Reid Stephens. In September 2022, Sloane made her grand entrance into the world six weeks early. Just five short days after being born, Sloane was rushed into emergency exploratory stomach / GI surgery.
After multiple surgeries and a month-long stay in the NICU, Sloane was diagnosed with Cystic Fibrosis. This came as a shock to our family as this was undetected on Callie’s gestational genetic testing panel and we had no known family history of the disease.
Cystic Fibrosis is a rare, progressive, genetic disease that affects the lungs, pancreas, and other organs. Cystic Fibrosis is a life-threatening and life shortening disease. In recent years, there have been many breakthroughs in Cystic Fibrosis-related treatments that have greatly enhanced the expected quality of life, but the work is not done!
Although the news may have made everyone else stop in their tracks, Sloane never missed a beat! Everyday with Sloane is a constant reminder that Cystic Fibrosis will not define her life. She continues to grow and loves to share her smile with everyone she meets. Sloane may be “rolling” in her stroller this year, but we have no doubt that she will be leading this charge in short order.
The Rolling Sloanes are driven by a dream that one day, every “Sloane” will have the chance to not only live a long, healthy life, but have access to a cure. Join our team and together we can make CF stand for “Cure Found.”
Join Our Team
The Rolling Sloanes stand on the shoulders of the Cystic Fibrosis families that have paved the way through advocacy and fundraising thus far. We want to follow in their footsteps by helping make a difference in not only Sloane’s life, but the lives of all people living with CF. To become a member, click the "Join this team" button. From there, you can donate and start fundraising.
We will continue to update our page to keep members updated on the walk and other fundraising activities. If you have any questions, please do not hesitate to reach out.
Chad & Callie
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