My Great Strides Story
My name is Lindsay Nooner. I am a wife to an amazing husband and mama to the cutest baby boy. And believe it or not I am 31 years old living my best life with Cystic Fibrosis.
I have a double copy of the F508 gene. I was diagnosed at 13 and what a scary world CF seemed to be back then. I'll be the first to admit doing my treatments and taking my medicine is the LAST thing I wanted to do. Thankfully with the help of those that love me the most I grew up and finally started taking my disease seriously.
That is when I found this life changing medicine called Trikafta. Since starting Trikafta I barely cough, I have no issues keeping weight, and I can do so much more. But the most important thing Trikafta gave me was the gift of motherhood.
If it weren't for programs like Great Stides and the CF Foundation I can't imagine where my life would be. I am eternally grateful to God, my family and friends, and every person who donates to programs like Great Strides and The CF Foundation that allows continued research for this disease.
Your support makes a difference.
By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.